Alexandra Emma Grussing died suddenly in the early hours of July 11th, 2023 in Kettering surrounded by members of her family. 

Alex was diagnosed with Prader-Willi Syndrome when she was seven months old and has lived a happy and active life. Equipped with the memory of an elephant and a desire to know every plan, she was a constant source of reminders and questions for her family, friends and the loving care team at Smythe House.

She had lived at Smythe House since 2018 as a safe haven for adults with PWS in Kettering. Alex arrived directly from Derwen College where pursued an education in animal care and horticulture. It was at Center Academy where Alex earned her Art GCSE and produced countless self-portraits nearly as colourful as her. For the last year she lovingly cared for the garden at her parents second home near Kettering.

Alex carved out a passion for piano, music theory and dust preventing socks for her keyboard pedals. Only the lucky few received the gift of a Happy Birthday electric keyboard rendition delivered over the phone across the pond. But all who knew her knew her thoughtfulness whether in the form of a birthday card delivered 4 months early, under yards of tape and signed Alex (Grussing) or even the first meeting. Alex was interested in everyone she met and carved out a community of lifelong friends spanning London, Kettering, Germany and a large US fanbase. 

Alex was inherently caring but no doubt learnt this from the wonderful carers she was surrounded by from a young age. Through all the changes in Alex’s life Derry, who worked with Alex since she was seven, has been a continuing source of friendship, learning and light. Alex greatly enjoyed all of the time she spent in the company and companionship of Derry. 

 Alex had an unwavering sense of fun and sense of self. Whether it was cutting her own hair into new and eccentric styles or simply giving it to you straight, Alex’s honesty and clarity made her a friend and teacher to those around her. 

Alex is survived by her parents, Kate and Jon Grussing, and her sisters Charlotte and Madeleine and brother Max. All four siblings spent a memorable day together just last week at the Kettering Fun Fair. Alex confirmed her place as the oldest, wisest and bravest of the four siblings from 30 feet up in the air. She is also survived by her grandmother, adoring aunts, uncles, godparents and cousins. 

Charitable donations may be made in Alex's memory to the Prader-Willi Syndrome Association UK. The PWSA is and was a lifeline for Alex and her family us who loved the wonderful community of parents, carers and people with PWS who accompanied the family on this too-short 28 year journey.

This can be made via https://www.pwsa.co.uk/